A SUN-DRENCHED garden in Corlette became the Amalfi-inspired backdrop for something far deeper than a summer party last month, as grandparents Geoff and Liane Stalley turned love for their grandson into action by raising $31,000 for Duchenne Australia.
The “Spritzed for Duchenne” fundraiser, held at their home in Port Stephens, brought together more than 100 guests for an afternoon of spritz cocktails, live music, homemade canapes, a silent auction and a raffle.
Geoff and Liane’s grandson George lives with Duchenne muscular dystrophy, a rare and fatal genetic condition that gradually weakens muscles.
Liane says the diagnosis was initially overwhelming.
“There was a lot of confusion at first – what did it mean, what would life look like for him?” she said.
“Once we understood, our concern shifted to our son and his wife, and how their lives would change.”
At the time, the couple were expecting their second child, adding another layer of fear.
Geoff and Liane’s granddaughter Eve was later born without the condition, a moment of relief in an otherwise difficult chapter.
Since then, they have found purpose in practical support and advocacy.
Living a few hours away, they help by caring for George and Eve during school holidays, giving their parents much-needed respite.
“Sitting around is not an option,” Geoff said.
“We want to build awareness and raise funds to support the charity leading the charge for families like ours.”
They were blown away by the community response to their fundraiser.
Donations and auction items flowed in from near and far, and suppliers gave food, drinks and time to keep costs low.
A local art group created spritz-themed works that alone raised $1500, while individuals stepped in personally when businesses couldn’t officially donate.
“Distance means nothing when friendships run deep,” Liane said.
“People travelled from all over just to be there.”
The couple say the experience has reshaped their view of community, especially after moving to the region less than five years ago.
“We’ve been embraced by the most generous, fun and supportive people,” Geoff said.
For other grandparents facing a rare disease diagnosis, their message is simple: step forward.
“It’s daunting at first, however your family needs you,” Liane said.
“Talk about it. Create awareness. Ask for help, you might be surprised by how people respond.”
With research advancing and global collaboration growing, they remain hopeful.
However, until a cure is found, they’ll keep pouring the spritz and their energy into the fight.
By Jacie WHITFIELD
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